Car seats are one thing that everyone must have in order to leave the hospital and then for many years to come. As with all the At Home Care pages, we start out with infants and work our way up to bigger kids.
 
Car Beds
 
Most children born with hydrocephalus fall into the category of preemie and/or big-headed. If this is the case your child will have to pass a car seat test before they can be taken home. Preemies or kids with big heads may not have the head control to keep from slumping down in a car seat and cutting off their own airway.

The test typically requires you to bring in the child's actual car seat. The child is then hooked up to a pulse-ox - a device that measures pulse rate and oxygen level. They then leave the child in the car seat for the same amount of time that your drive home is expected to take. If you have a particularly long drive then they may allow a few breaks to simulate stopping the car and getting out to stretch your legs. If the child can keep their oxygen level in the normal range then they can go home in their own car seat. If they cannot then you will need to invest in a car bed which will allow them to lie down for the ride home.

There are three different models of car beds, based on the child's weight and how long you think you will need it.


The Angel Ride Car bed is used for the smallest infants. The child must weight less than 9 pounds and be less than 20 inches long. It won't last long, but being a small bed it might be the most comfortable for a really small baby, even though the other beds are also rated for tiny ones.



The Cosco Dream Ride Car Bed is a medium range bed. This is actually the one that we used since Owen was over 9 pounds when he was born. This bed is rated for babies 5-20 pounds and 19-26 inches long.



The Hope Car Bed is the largest of the three models and can accomodate a child from 4.5 to 35 pounds and up to 29 inches (longer if you don't mind their legs bending a bit). If you anticipate needing the bed for a long time this might be a good choice.

Most hospitals either have car beds that they can loan you, or they can help you get one so ask around first before you go and buy one. Some other thoughts to consider with the car beds are that they take up considerably more room in the back seat than a normal car seat does. I could just fit the Dream Ride in the back seat of my Honda Civic with his sister's car seat next to it. I imagine that the Hope Car Bed is somewhat larger and if you have a compact car you are probably limiting yourself to just one car seat in the back.

This is also another place where the receiving blankets that I rave about on my Positioning page are useful. Rolling one up and putting it under the child's neck can help to keep their airway positioned correctly. We also put one rolled up on either side of Owen to keep his small body in the center of the bed.
 
Infant Car Seats
 


Before Owen was born we had purchased a standard Graco SnugRide infant carseat. Infant car seats have a base that stays in the car and you can just detach the carseat to bring inside. These are very convenient for little ones since you can keep them in the seat if they are sleeping when you get home. You can also just bring the seat into a restaurant and let the kiddo sleep away while you eat (if you are that kind of lucky). The downside to these is that they are only good for about the first year as they are typically only rated to 20 pounds and they cannot be turned around to a forward facing position. We used this when Owen outgrew the need for his car bed, but with his big head he quickly outgrew the infant seat.
 
Rear Facing Carseats
In every state that I know of, infants are required to be in rear facing car seats until they are at least one year old. If you have a child with a larger than normal head or who who has low muscle tone you may wish to consider the idea of keeping them rear facing for longer than the one year to give them extra time to develop full head control.

We tried a number of convertible car seats (can be either forward or rear facing) before we found one that actually worked. We had a basic infant Graco rear facing which worked allright for a few months, but his head was so big that he outgrew it quickly. We tried a Safety First All-in-One which was terrible because the back plate pushed his body so far forward. We finally settled on one that worked perfectly because it cradled his body so well.



The Britax Roundabout is rated for rear facing to 35 pounds, and is also snug enough to handle a 5 pound baby. It can be front facing up to 50 pounds. Owen is four as of this writing and we are still using it.
 
Car Seats for Older Children


Britax and Snugseat have teamed up to create the Traveller Plus EL which is rated for 22 - 105 pounds. It is a forward facing only seat, but it has some nice special needs features including extra lateral head support, easy reclining for those with limited head support or low muscle tone, a five point harness that fits much larger children than your average car seat, and an abductor to keep them from sliding down. This is a fairly new product so we haven't tried it, but it looks much more comfortable than many of the other special needs car seats out there.
 
 



Legal Disclaimer: While every effort has been made to make certain that the information contained in this website is accurate, it must be remembered that the content is managed by a parent, not by a doctor. Information contained here is for general support purposes only and is no substitute for the care of a physician.