The Amazing Owen Higgins
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Sorry for the Spam, Updates ARE Coming
Hi All...Sorry for all the messages that went out earlier.  I thought I had stopped my test server from sending them out, but I hadn't.  I am working on some new features that I hope to finish soon. 

All is well with Owen and things are warming up nicely for some spring fun. 

I'll be updating many of the pages that have gear for our kiddos in the next few weeks.  If you have any feeding seats, strollers, or other handy stuff that gets you through the day, please feel free to send me the info and I'll put it up to share with other parents. 

Have a great night, and Sorry for the Spam!!
 
By Leaps and Bounds

So, when last I wrote Owen was trying out some new seizure meds.  Things have been going pretty well with them - no seizures and he has adjusted well to them, but a few days ago Owen started being really irritable and biting people again - it was reminiscent of the Keppra days.  Yesterday he had his seizure follow-up visit with his neurologist and we discussed the new behavior.  At that time we had been taking Owen's daytime dose of Trileptal and Zonegran and splitting them in half - giving a quarter dose in the morning, a quarter dose at lunchtime and then the last half at bedtime. The label says give him 1/2 of each in the morning and 1/2 at bedtime, but he just couldn't function during the daytime that way. Owen's behavior was definitely the worst in the morning, getting better throughout the day.  So, Dr. Wilson suggested eliminating the quarter dose of Trileptal first thing in the morning as it makes Owen tired and it might be making him cranky to get something that makes him tired right after waking up.  We tried it today and it was the best day we've had in ages.  I don't know if it was just a coincidence, but I'll take days like this anytime for any reason:



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Owen has been making incredible progress in his physical abilities in the last few weeks - and in his intellectual ones too.  I've put together a video of some of his latest accomplishments.  Owen has never really gotten the hang of tool usage -  he just eats all objects that he is given and never attempts to use them for any specific purpose.  One of the places that we have started in OT with this concept is to get him to bang a drum with a stick.  We have been working on this forever.  It's a bit hard to see in the little video that I can upload to the web, but in the first bit he is happily banging on a little drum with a stick. 

From the drum we move onto his new ability to CRUISE!!!  He can take steps sideways while holding onto things.  He starts out holding onto the gates where his toys are tied up and makes his way to more toys on the couch - all under his own power.  This is just so cool (Yes, Mommy is bouncing)!    After that is just a bit of him practicing standing up from a kneel - this one is for Ms. Nacol his PT, just to prove that he really did it :-)   Next, he shows how he can crawl from the floor up to toys on the couch using his stairs. It's not graceful, but it is effective.  Finally, you can see him working on his walking - he's taking steps with just holding onto one of Tessa's hands. 

Enough verbage...here's the small version video for low bandwidth (less than cable modem):

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And here it is in DVD quality for grandparents who are willing to wait for it, or those lucky people with cable modems or better:

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Not bad progress at all!
 
Owen Has a Playdate
And Mommy too!  We were very lucky in early 2008 to meet little Elijah and his family who live very near to us.  Eli also has hydrocephalus - though, of course, his story is quite different from Owen's just as all kids with hydrocephalus have their own unique way of manifesting this nifty little condition.  I thought it would be fun to show the two boys as they have grown up together. 

January 2008 when Owen's head was almost as big as all of Eli:

September 2008, Eli's catching up:

Now we have actually seen each other since then as we have run into each other in Walmart and such.  However we hadn't had a chance to really get together again until this week.   Here they are in February 2010, along with Eli's big brother Spencer.  Eli is about a year younger than Owen, but he is now taller than Owen is when they are standing up (because Owen has such short legs):

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Owen is so happy he's clapping (which is his favorite hobby now):

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And here they are, just two boys hanging out:

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It's always a good time to hang out with Jen and this time she brought all five kiddos so I finally got to meet them all.  You can read more about this wonderful family here.

Otherwise things are getting back to normal.  We have split Owen's daytime doses of seizure meds into two so that he gets half in the morning and half at noon - this seems to be helping him to handle the load quite a bit better and he's now functioning normally in the mornings again. 

I will close with a cute picture of Owen.  It's not just cute because he's sleeping - and all children are adorable while they sleep - but also because of how he got there.  That pillow with the purple pillowcase hangs out in our living room on a full time basis.  It is there to put next to Owen's stairs and ramps so that if he falls off the side he won't hurt himself.  It is also used at naptime where we put him down to sleep on the living room rug so that we can keep a closer eye on him than we can upstairs in case of seizures.  Today though I left Owen over by his toys well away from this pillow and headed out into the kitchen to make lunch.  When I came back out into the living room there was Owen, all snuggled up on his pillow.  He had crawled there all by himself, made himself comfortable and fell asleep.  I put lunch back in the fridge :-)

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