Share Stories   This is the place where you can share your stories to give other parents much needed information about what they might be able to expect. There are many different causes of hydrocephalus and every case is different, but it is still helpful to hear from people that have actually been through this. **Note - This feature has recently been upgraded so that you can add updates to your original story. If you have added updates in the past I have moved them to be with your original story. You can now add updates by going to your original story and clicking on "Add Update" at the top of the page.   Stories Shared Here on FetalHydrocephalus.com If you would like to share a story, please click here.   Clayre's Story  (Updated On: 3/7/2011) Diana P's Story  (Updated On: 1/22/2011) baby robert  (Updated On: 12/25/2010) Our Precious Amber  (Updated On: 11/3/2010) Zachary James  (Updated On: 10/30/2010) hydrocephalus in a 27 week Premie  (Updated On: 10/28/2010) Samera (Protected by God) Nyel (Champion)  (Updated On: 10/28/2010) Blake Alexander Cotten 4-17-2008 Our Angel Boy  (Updated On: 10/17/2010) James' Journey  (Updated On: 10/11/2010) Emily Hope  (Updated On: 7/7/2010) MY GIRL MELIKA  (Updated On: 7/5/2010) Our little Baby Cannon  (Updated On: 7/2/2010) Our Brian  (Updated On: 6/21/2010) KYLAH HAS AN ANGEL WATCHING OVER HER  (Updated On: 3/29/2010) Thane's Story  (Updated On: 3/23/2010) Sweet Baby GAGE  (Updated On: 2/8/2010) Parker's Story by TurtleMom  (Updated On: 12/11/2009) Miracle Mia  (Updated On: 9/13/2009) Life Histroy  (Updated On: 8/8/2009) Ashlyn Grace  (Updated On: 6/23/2009) Kayla Coyomani  (Updated On: 6/20/2009) Anton - my prince!  (Updated On: 4/5/2009) A Brother  (Updated On: 3/23/2009) Kendal Faith "Our miracle"  (Updated On: 2/19/2009) James' Story  (Updated On: 9/9/2008) Jesus' Story  (Updated On: 9/2/2008) new diagnosis of ventriculomegaly  (Updated On: 8/28/2008) A worrying time  (Updated On: 8/11/2008) Chloe's a Fighter!  (Updated On: 8/10/2008) Madison's story ( My miracle)www.littlemadisonrocks.com  (Updated On: 6/9/2008) (Amy) Our walk with hydrocephalus  (Updated On: 6/5/2008) alfies story  (Updated On: 5/29/2008) tylers story  (Updated On: 5/21/2008) My little girl's story  (Updated On: 5/18/2008) Jameson's Story  (Updated On: 5/10/2008) Kadyns Story  (Updated On: 4/19/2008) our walk with hydrocephalus  (Updated On: 4/15/2008) Sophia's Story  (Updated On: 4/11/2008) Jonathan  (Updated On: 3/4/2008) mommy's soulja boy  (Updated On: 2/19/2008) Cayman's story  (Updated On: 1/24/2008) Caleb's Story  (Updated On: 1/6/2008) Noah's story-twin B  (Updated On: 12/20/2007) Elisabeth  (Updated On: 12/3/2007) Victoria's Story  (Updated On: 8/15/2007) Elizabeth Faith's Story  (Updated On: 8/12/2007) Nancy's Story  (Updated On: 1/17/2007) Ginger's Story  (Updated On: 11/17/2006)   Family Blogs and Websites Many families have their own blogs or websites where they share the details of their journey and these are listed below. If you would like to add yours then click here.   alice kubac's blog Amy Faith our Hero! Ashlyn Grace Aurelia Kathleen Avery Marie Bryleigh Marie Carter-Brave with Hydrocephalus Dylan Jouppi eat. make.live Elijah (The Later Entries) Elijah's Story (The Early Entries) Jared Joshua Orner Jared's Hope Jayce Vang Jobe's Journey Kadyn's Story Lilah Bea Lillian Grace Danielle Live Life in Wonder Maddox's Story Miracle in Weyville, a Story about Austin Miracle Mia My Empty Arms Nola's Journey Oh Audrey Sue Our Baby Boy's Journey Our Hydrocephalus Miracle Owen's Story Parker Mason Brown Pray for Claire Roberts Journey with Hydrocephalus So This is Holland? Teagan's place Tessa Hope the 6 of us The Higgins Family The Journey of Camilla Joy The Kinnairds Tyler's Trip Tyler's Trip (Early entries) Violet's Journey with Hydrocephalus & Microphthalmia Ward We're all just seeds We've Come This Far By Faith - Zoe Lynn When Your Child Has Congenital Hydrocephalus   Legal Disclaimer: While every effort has been made to make certain that the information contained in this website is accurate, it must be remembered that the content is managed by a parent, not by a doctor. Information contained here is for general support purposes only and is no substitute for the care of a doctor.